Voices of AHP  

Hear from the people about their experiences living with acute hepatic porphyria (AHP)

Voices of AHP is a platform filled with real stories from real people about AHP. These stories may help encourage those who may be undiagnosed to recognise and understand the symptoms of AHP and how they impact the lives of people with AHP.



A story of human strength, perseverance and survival, chronicling the lives of seven people around the world living with acute hepatic porphyria (AHP), a debilitating, rare genetic disease characterized by excruciating attacks and, for some, chronic symptoms. The film is directed by Emmy-nominated filmmaker Cynthia Lowen and sponsored by Alnylam Pharmaceuticals.

People living with AHP can often wait up to 15 years to receive an accurate diagnosis. Help close this gap by telling 15 people about the film to raise awareness of AHP.

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