It started with nausea, vomiting, and fainting.
I was treated for ulcerative colitis.
Then endometriosis and depression.
They said it was all in my head.
It’s acute hepatic porphyria.
TWO OF ME: LIVING WITH PORPHYRIA
A story of human strength, perseverance and survival, chronicling the lives of seven people around the world living with AHP.Watch Documentary
COULD IT BE ACUTE HEPATIC PORPHYRIA (AHP)?
Have you ever had severe, unexplained abdominal pain, along with at least 1 other symptom? It could be limb, back, or chest pain, nausea, vomiting, confusion, anxiety, seizures, weak limbs, constipation, diarrhea, or dark or reddish urine.
The experience may have sent you on repeat doctor or hospital visits over the years, often resulting in different suspected diagnoses.
If this sounds at all familiar, it may be a family of rare genetic diseases called Acute Hepatic Porphyria, or AHP.
AHP is a disease that people may experience differently. It has a wide array of symptoms that often mimic those of other diseases, making diagnosis difficult. AHP can even cause potentially life-threatening attacks.
The good news is that there is support available and a simple way to test for AHP. This website provides education, resources, and information on how to get tested, so you can get answers.